Celery!

Laura pushed her feed away and asked for celery for lunch!! This is great although somewhat restrictive as she is only eating celery. Mind you she did have 6 pieces and almost finished the whole pack that Mick bought this morning!

Cyprus!

We got back from Cyprus yesterday. The weather was very good, a little too hot the last couple of days but a lovely sea breeze.

Unfortunately Laura was poorly for the first 3 or 4 days. She was bit quiet before we left but deteriorated on the plane and was very sick that night. She remained under the weather for a few days, being very reluctant to get out of bed. Later in the week she did improve and managed to get into the pool most days and play in the playground.

Salad days!!

Laura is at Glenfield for the weekend. I've just rung to see what sort of day she's had and they said she has been eating salad for tea!! She actually took a chip from another child's plate and screwed it up in her hand so they gave her some celery to play with. After a bit of playing she started to eat some!!! They then gave her some crunchy lettuce, tomatoes and strawberries and she ate some of them too! Mind you, they said she was wearing quite a lot of them but plenty went into her mouth, so that is great news!!

Aparently she was due a feed so was probably hungry so I will have to try her on some solid food before she has her liquid feed and see if she will eat a bit at home too. Glenfield are sending her to school tomorrow with some celery and a note to see if she eats some at school.

I will have to pack a tub of salad items for on the plane journey on Wednesday, and a very big bib too!!!

Better now

Laura seems fine now. She hasn't had any visible signs of illness but I think she had a sore throat as she was reluctant to swallow at the weekend. A few doses of nurofen seemed to help and she was a little subdued for a day or two but is OK now.

The weather has cooled a bit now which is probably a good thing for Laura but I do prefer the warm sunny weather!

I can't believe it's only a week until we go away! There is so much to do just to go away for a week with Laura. I've had to get letters from our dietician and neurology nurse to cover the bottles of liquid feeds and the liquid meds as of course there are restrictions on liquids on board flights. I've rung the special needs department at Thomson twice and now have to ring a third time to get extra baggage allowance for Laura's feeds. We may not need it but it's best to have it just in case.

Laura's at Glenfield for respite this weekend. It's a shame it's come so soon after Rainbows but good timing for our trip next week. I can get everything packed over the weekend as I'll be working Monday and Tuesday and then we go on Wednesday. Laura probably won't be too happy at being away from home again as she is very attached to her DVDs at the moment and has to share the TV at Glenfield unless she goes into her bedroom. At Glenfield they do tend to take them out a lot at the weekend and are sure to this weekend as they have a parents' gardening session planned. I will try and pop over with some plants on Friday or Saturday. It's good for Laura to get out and about but she probably won't see it that way!!

Under the weather

Laura's been under the weather today. She had two seizures yesterday, one at school in the afternoon (2-3 minutes) and a shorter one at home in the evening. She had a slight temp later in the evening although it seemed to settle and she slept through until 6am.

This morning she seemed OK at first but then vomited up her entire feed (300ml of milky liquid - YUK) all over herself and her armchair. It looks as though she has a sore throat as she is reluctant to swallow any water or even her saliva. So I have been giving her nurofen all day and that seems to help.

Laura had a good stay at Rainbows although ended up in the cube bed after the first night when she was found on the window sill!! She enjoyed playing in the paddling pool whilst there and had swimming at school on Wednesday and Thursday.

The weather has been lovely this week, very sunny, in the mid 20s, so I think the heat may have affected Laura as the carers at Rainbows said she was very tired at the end of each day.

Sunshine!

It's a Bank Holiday today so, as usual, it was dull and drizzly for most of the day, but then at 4pm, the sunshine finally arrived, so I insisted that Laura leave her Fimbles DVDs and go into the garden.

She was reluctant at first, but once outside was quite keen which is unusual at the moment as she rarely goes outside in the garden any more.

I had to divert her from picking the flowers and leaves off plants and bushes, although I didn't mind when she discovered the dandelions in the lawn!

As usual she made a bee-line for water, testing the watering can and then later heading off up to the trays alongside the greenhouse, where she knows water collects. Just look at how happy she was.

Sold!

Well we've had four people look around the house and the first ones who viewed it have bought it! They increased their first offer by £10k and so we've accepted it. It's £15k below asking price but reasonable for a quick sale. Thank goodness we'll haveno more people to show round here!

Rainbows rang yesterday to offer Laura three extra night next week which is brilliant! We're lucky that we are so close by and because Laura can go to school she doesn't need as much care as some kids. Things have been pretty frantic and stressed here the last couple of weeks with getting the house shipshape, so it will be nice to have some extra respite.

Laura's had no seizures since school on Monday. We're having problems with her crunching and chewing her Ritalin capsule which is supposed to be swallowed whole. School have said she has been "lively and determined" the last three days, so no doubt that is the knock-on effect of that. I'm not sure how to stop her chewing it as it's too big to put down her tube.