Baths

Seizures in baths is an unfortunate feature of Dravet syndrome, although Laura has only rarely had them in the bath itself. But for a long time I have noticed that she has eye blinks/flutters immediately after a bath whilst laying on the bathmat and being dried. She also has had bigger seizures at this time too, including last night.

I think it must be to do with the sudden change of temperature. Unfortunately Laura's bathroom doesn't ever get warm and is often pretty cool. It's at the end of the heating pipework and the towel holder never gets very warm let alone hot. Plus it is attached to the garage and also has an outside wall, so probably loses what ever heat there is quite quickly. We did have underfloor heating put in when we had it built but with a bathroom the floor space is small and so it doesn't have much effect.

So I'm thinking too that when we move, we will put in a wet room for Laura rather than a bathroom, although Laura will miss the bath tub I am sure. She is having more difficulties getting in and out of the bath too and so that is another reason for changing to a shower.

Strangely last night she got up soon after the seizure and walked unsteadily into the lounge and sat down for half an hour. She then took herself off to bed. She was very restless in her sleep and I was rather worried when she didn't get up this morning. It was one of those days when I enter her bedroom with dread. Thanks be to God she was sleeping soundly, although was back to front in her bed with the covers on the floor. I probably should have slept in with her. When we move our bedroom will be next to hers and so monitoring her will be easier.