Haircut!!

OK I am not a hairdresser but have to resort to being one for Laura as there is no way we could get her to co-operate for a real hairdresser. So I have had a hack at her fringe as she it was beginning to cover her eyes. She looks happy enough anyway!

She was not herself this morning, very subdued and wanting to lie down with her fleece blanket whilst she waited for the school bus. I was convinced she was going to have a seizure and I was going to get a call from school but actually apart from being very tired and having some visual disturances, she has had a good day. Which is an improvement on the last two Fridays when she has had a seizure either on the horse or on the way to horse-riding. I was beginning to think there was a trigger with the horse-riding as I know she doesn't particularly enjoy it. But today she went riding with no problems, so hooray! Next Friday is her last riding lesson this year and so they are having some races and awards, so I will try and go and watch that.

My operation is going ahead for 28th August. Rainbows are having Laura for 8 nights so I won't have to worry about her whilst I am in hospital and the first few days I am home which is a huge relief. I've also spoken to our social worker and she is going to request home care for 1 hour in the morning and 1 hour in the evening to help get Laura up, changed and dressed, and fed. At the weekends I've asked for a little more during the day if that is possible, so fingers crossed. Glenfield will hopefully be able to schedule our respite for September and early October too and the social worker will request an extra slot for us in that 10 week period. So hopefully we will be able to manage.

The dietician has been this afternoon to show me how to use a feeding pump. This will make it easier to feed Laura when she is outside and also after my operation as it can be attached to her chair and she can be strapped in and fed rather than chasing her round the room as we do at the moment!

We weighed Laura and she only weighs 23.5kg, so the same as last October. She's grown about 10cm in the past year, so we are going to increase her feeds as she needs to put on some weight. Hopefully she'll tolerate the increase OK.