Sad news at Easter

Another child on our Dravet support group died this morning. She was nearly 6. I don't know any details but in all probability it will have been a nocturnal seizure as this seems to be the pattern with Dravet syndrome. It is especially sad to lose your child at a special time like Easter or Christmas as a time of joy will forever be associated with sadness. She was a beautiful girl and now a special angel. I lit my special candle for her this morning.