Apologies for being away for so long! I finally signed up for Facebook and that seems to replace the blog in some respects, although I will try and update regularly here too.
The Dravet conference in Verona went really well, my presentations were very well received, learned a lot from the world Dravet experts and made lots of good contacts.
Laura is doing relatively well at the moment. She had a bad sz at school on the last day of term and we ended up in hospital for the night but has been ok since.
CAMHS (psychiatrists) are doing an assessment for her behaviour and communication, and that is proving worthwhile but long-winded. Some of her screaming was definitely linked to constipation which with movicol, lactulose and coming off Topamax, has reduced a lot.
Since I last blogged, Laura has become obsessed with being outside in the back garden, playing with water. This has been great for her and for us, as before that she spent most of the time watching DVDs. Even through the winter, clad in her snowsuit, hat and wellies, she has spent long periods slopping with water and soapsuds.
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