Laura came back from respite today. She wasn't really herself and was rather warm. I rang school because she came home with all her bags but no buggy. Spoke to Laura's teacher and found it'd been left at school. Thank goodness it wasn't left at repsite as that's further to collect it.
Anyway, Laura's teacher told me that she'd had a seizure during their school trip yesterday and they almost had to give her paraldehyde. I looked in her seizure diary and they logged it as 2 minutes and she slept for an hour and 20 minutes afterwards. I wonder if it was the sun and water together as the trip was to a reservoir. Pauline said she'd been "off" at lunchtime today so maybe it's more than that.
Pauline also told me that the OT seems to have relented about the chair and has one she wants to show Pauline. So that sounds more hopeful.
One of the Diana nurses came round this afternoon to introduce herself, tell me a bit about their service and answer any questions. She was very nice and said she'd talk to the OT about a feeding chair for home, so fingers crossed. She'll come back in a few months to change Laura's mic-Key. I showed her the extension tube that had stopped working and she said that it sometimes happens when you use them a lot like we do.
I had a very boring day today as I ended up staying in all day for Laura's new bed to arrive. It was supposed to be delivered this afternoon but then one part arrived at 9am and the delivery man told me the rest would be between 10 and 11, so I waited for it only for it to come at 1.30. I wasn't too happy and told the company what I thought of their service especially considering they charged £35 delivery!! She said she'd do me a discount on the delivery charge but I'm still not too impressed.
I hope the bed (which is still in boxes!!) works for Laura as I've spent 2 years searching for one to replace her lovely Stompa Junior bed. It's a similar design with sleigh sides but is white (wouldn't be my choice of colour!!) and is full size. It cost £295 (incl a discount of £100 as it's a second with a few minor scratches/dents). I'm hoping it's just a few scratches or I'll have more to complain about. The company (Aspace) have stopped making this design and it was what I thought would work best for Laura to stop her rolling off the bed so I decided to go for it. Then I suddenly realised yesterday that it wouldn't have a mattress so ended up spending another £199 on one - a bit more expensive than a basic one as I got one of those memory foam ones to deter her from bouncing on it. So a very expensive bed all in, thank goodness we get DLA for her!
Anyway I'm off out with the girls tonight and Mick is babysitting so I'm hoping for no more szs as he's not very good at dealing with them.
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