No more seizures since Tuesday, hooray! And now Laura is completely off Epilim for the first time in 8 years, another hooray!! She has times when she is very jerky and sound sensitive so we may have to add a daytime dose of clobazam, but I will give it a few more days before we do that.
Anyway, this morning I needed to go and buy another Easter egg for one of Laura's cousins. Alex was going to Budgens so I asked him to pick one up but they had already sold out of all the suitable ones. So I decided to brave it and go down to the village shops with Laura. Of course the disabled spots were taken by people without blue badges (grrrrr!) but after a little wait we were able to get into one just outside the main shop. Laura was grizzling, resisting getting out but I decided to insist rather than giveup. Holding both of her hands, we managed to get into the shop, get a couple of eggs and line up in the queue. She was pretty good standing there although needed a close hold so she didn't make off but it was manageable. So we will try it regularly.
I posted a letter to the OT whilst we were down in the village. I have decided to insist that they provide a suitable chair for Laura to have her feeds in. Apparently she has relented with school and has said that she has found a chair for them to try, so I think maybe I just need to find the right wording ("duty of care" is a good phrase that people use in battles with professionals, so I've included that in my letter) to persuade them to provide one for us. So watch this space!
On the car front, I have arranged a demonstration of the Wheelchair accessible Sedona.
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