One of the kids on our Dravet support group died from a seizure on Sunday night. He was only 4, and an only child. It's heartbreaking for his parents. We met them all a couple of years ago when we had a families gathering in London. I would like to go to his funeral but it's 3 train changes away and just too long a journey for me at the moment.
Yesterday I went to a parents support group meeting at Rainbows. It was the first one, so a good opportunity to meet lots of new people and get a free lunch! They are going to be monthly, hopefully on a Wednesday so I will get to go. Most people don't work so it seems it won't be a big problem choosing a day that everyone will be happy with.
Laura had a dentist appointment yesterday. It's been 18 months since her last check up as the dentist left and they have struggled to replace her. The new community dentist was very good and didn't get bitten once! Laura seemed to like the large lamp shining down on her and co-operated quite well. She needs to see the hygienist next month and that could be a whole different story!!! I asked again about having Laura's back teeth coated but this dentist maintained the same stance as the last one, that they won't give her a general anaesthetic just to do this. Sort of annoying as we have tried to get them to organise it around other GAs in the past 2 years but they have never managed to achieve it. Luckily Laura doesn't eat sugary things so her teeth are all pretty good but I do want them to stay this way.
Have strained a muscle from bending down to coax Laura off the grass on Sunday. I will need to see the doctor next week if it's no better.
It's (grand)dad's birthday today - HAPPY BIRTHDAY!!
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