Update

I've been out of action following my operation (hysterectomy) at the end of August. So lots to update on.

Laura's been doing better seizure-wise since we added Topamax in August. She is about half way through the weaning-on schedule and will be on the full dose towards the end of November. She has had a few seizures but nothing bad and even managed to go to school after a 6am seizure one morning.

Laura has changed her sleeping pattern for some unknown reason and is rising very early most mornings (often between 4am and 5am). She has dark rings under her eyes and is obviously not getting enough sleep but when she wakes, is wide awake and full of beans and won't go back to sleep, so we start our day very early most days. Thank goodness I am not back at work for a few more weeks.

The new car (WAV) has arrived although I can't drive it for another week yet due to my operation. We will be transporting Laura in it in her wheelchair for the first time on Monday as we have an appointment at the wheelchair clinic to have her new wheelchair fitted.

Laura's new piedro boots have arrived and are great, although I'm not sure she'd agree as she prefers bare feet! They are much more supportive than previous boots as they are much higher up her calf. Her walking is quite bad at the moment but hopefully these will improve things.