Seizure alarms

I got a package this morning from the Muir Maxwell Trust (MMT). MMT fundraise to provide free epilepsy alarms to kids under 18.

I'd heard about the alarms some time ago but had heard that they don't always pick up seizures with subtle movements, so I hadn't bothered to apply. Instead I've been trialling a Finnish alarm but that is proving troublesome as the Parent Receiver Unit really is inadequate. The firm keep trying to improve on it but that is proving expensive and time consuming sending the units back and forth in the post.

Meanwhile I heard last week that MMT had a new alarm, so I emailed with them and it turns out they have two different alarms: a seizure alarm which works on movement and an apnoea alarm which works on lack of movement/breathing. They recommend a combination of both for us, so I decided to apply. Being as they are free I figured I might as well try them before shelling out the £600 for the EMFIT alarm which is not quite there yet.

Anyway back to my package... it wasn't the alarm as I have to get a form signed first to apply for that but it was a MMT teddy called Max. They had sent it because Laura is the 1,000th child to receive one of their alarms! They asked if we'd do some publicity for this and I don't see why not, they're a very worthwhile cause and actually Muir Maxwell has Dravet syndrome like Laura so all the more reason to support their charity.

Hopefully the monitors will work for us. Watch this space!!