We had a busy day yesterday as Laura had two hospital appointments in the afternoon. First we saw Orthotics who agreed to get her some piedros as apparently the glue problem has been resolved. There were some new styles to choose from too and some extra high ankle boots which are really girly, so we chose those. Hopefully they will prevemt the toe walking and give her more stability.
Then we saw the epilepsy nurse, although we had a 3/4 hour wait between appointments and Laura was not happy. In fact she was not happy to be at the hospital at all and I had a massive battle to get her from her car seat to wheelchair. I can't wait for the WAV to arrive abnd we won't have that struggle again.
Anyway the epilepsy nurse could see I'd got my hands full and asked about respite which is not too bad over the summer (thank goodness!). She will ask Dr Jay about the blood clotting tests so we can get it done before we see him in mid August. She increased Laura's VNS, so hopefully that will improve her sz control and jumpiness. I hope it will improve her mood too!!
She wasn't particularly keen to be going to the playscheme today but I'm sure she'll enjoy it when she gets used to it. She is really only happy in front of the TV watching her DVDs at the moment but that is no life is it.
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