Wheelchair assessment

Laura had a wheelchair assessment/review today. The rep had brought the 14" Convaid Safari Tilt and it was definitely better than her existing 12" chair. It has a moulded seat which is much better too and I pushed for a head rest too as when Laura has a seziure or wants to sleep it is more comfortable for her than with her head flopping around. The OT wasn't inclined to let us have a sunshade but I pushed for it due to the photosensitive epilepsy and I think she will have to let us as we got one with the last chair. We got to pick a colour, although they wouldn't let us have a pink (kinda discriminatory as they made us have a blue one last time!) but I opted for the purple as it's a little more girly than the other options (green, red, blue, etc). They hope it will be here in about 4-8 weeks time depending on whether it has to be imported or if the supplier has one in stock.

I then took Laura up to Glenfield. She was briefly reluctant but was very keen once we got inside and went straight for the boxes of toys and found one with a variety of different balls. She was happily playing with these for ages whilst I checked in her meds. She was very good at collecting the balls up and putting them back in the box. It was quite funny as I could have just jumped to the conculsion that they had her well trained in tidying up but actually when I observed her more it was quite clear that she was keeping tabs on the balls as one of the boys there (the other three residents were all quite big boys of about 14-16) was quite keen to help her play with them!!! She wasn't having any of that and thought nothing of going up to him and snatching the ball back. Although she let him go after the first one, as that meant that he got up out of the pink bean bag bed and she plonked herself straight down on it - as Alex says, she is quite cute and not nearly as green as she is cabbage looking! He's convinced that she is just scamming her learning disability to get out of doing schoolwork and homework! I wish! Anyway, it is good that she has to share things at Glenfield or at least be aware of other kids there.

Tomorrow I'm off to London for a get-together with about 7 or 8 other Dravet mums (and one dad!). We're meeting in Starbucks and then going for a picnic on Regents Park or if the weather is iffy we'll find a good pub that is open all day! Most of the other mums have younger kids, a few of them are new to the group and have 1-2 year olds, so it will be all new to them and I'm sure they will have lots of questions. Three or four of them are off to the conference in Chicago next month so will be doing some shopping down there too, but I'm just after a lazy day!

Laura is at Glenfield until Monday so will go straight to school from there. I have sports day on Monday afternoon so fingers crossed the weather holds for that!