School's out for summer!!

Last day of school today, hooray! I didn't go in to school as it's not one of my working days and last night I was out with the rest of the staff for Sam's leaving do. Laura of course woke up with the skylarks this morning (5.30am!) just when I fancied a little lie in until 6.30. So I am on autopilot right now as I've had two late nights this week and I am definitely too old for that!

Laura is at the Birkett House playscheme for the next 2 weeks. I have to take and fetch her though and that's a big pain as it's about 14 miles away, across the city centre. I am going to try and experiment with some alternative routes this year as it seems to take me 45-50 minutes each way which significantly cuts down the time I gain from it. Then the third and fourth weeks she is at the Rainbows playscheme on the Monday, Tuesday and Wednesday, and as that is so much closer, it's better. I'm hoping she enjoys the playschemes. I'm going to be busy packing!!

Laura is really covered in bruises at the moment. She has two particularly nasty ones that school say she came in with from Glenfield on Monday. She is getting lots at school too and today came home with fresh grazes to both knees and both elbows, apparently from playtime. I don't think a concrete playground is ideal for SN kids. It's hard as I don't want to coop her up or restrict her to her wheelchair but I am concerned about all her bruises and scrapes. We have an appointment with the epilepsy nurse on Tuesday and then with Dr Jay in about a month. I am going to ask Berni for a repeat blood test to see what her fibrinogen levels are like. I really don't see any improvement since taking her off Epilim so maybe it's an underlying problem not caused by the epilepsy meds. Her gums are bleeding more now too so she is definitely not clotting properly and this morning I noticed some of the small purple bruises on the top of one of her feet. I can't remember what these are called but they are part of the clotting problem. TBH the bruising and her stumbling as she walks cause me more distress than the seizures. But bless her she seems to feel no pain but in a way that makes it harder as she doesn't learn to slow down and take more care.